• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
This Roller Coaster Called Life

This Roller Coaster Called Life

Life with Homeschooling, Sensory-Friendly Travel, and Reviews

  • Home
  • About Naomi
    • Privacy Policy & Disclosure
    • PR Friendly
    • Contact
    • Favorite Blogs
  • Disney
    • Disney Cruise Line
    • Disneyland
    • Walt Disney World
    • Disney iPhone Wallpapers
    • Planning for Disney
    • Disney
    • My Disneyland Worksheets and Checklists
    • My WDW Worksheets and Checklists
  • Travel
    • California
    • Florida
    • Pennsylvania
      • Hersheypark
      • Knoebels
      • Lancaster
    • Washington DC Area
  • Homeschool
  • Recipes

How Can This Be?

August 9, 2012 by Naomi M. 1 Comment

Share on Facebook Share
Share on TwitterTweet
Share on Pinterest Share
Share on LinkedIn Share
Share on Digg Share

I must admit that I read quite a bit of news.  Much of it, I read on news apps on my phone during breaks, but sometimes, I see an article go by in my Facebook news feed that catches my eye.  Yesterday, there was an article that a couple of my Facebook friends shared, and I just had to read it.

This story was about a young man named Paul.  Paul is a 23-year old man who happens to have Autism.  He is healthy, doesn’t drink, doesn’t smoke, but he has one major problem.  He has the same heart ailment that killed his father at the age of 27.

Paul needs a heart transplant; however, the Transplant Committee has denied him the ability to even be put on the heart transplant list.  Why?  Well, I’m not a doctor, nor do I even know him or his family, but the article that I read states that one of the reasons given is that Paul has Autism.

Really?  What about Autism would cause problems with a lifesaving surgery?  From what I’ve read, Paul has a large support network of family members who would ensure that he would be taken care of before, during, and after the procedure and that he would take the medications needed after a transplant.  He already takes 19 medications every day.

How did we get to this point that people could be denied a lifesaving surgery because they have Autism?

As I said before, I do not know this family, but I feel so bad for them if this decision was truly based on the fact that Paul has Autism.  He is a human.  He deserves the same medical care as a person without Autism.  It is unconscionable to think that parents of children with Autism not only have to fight for the basic treatment for their children’s Autism symptoms and fight the stigma that is placed on their children because of Autism, but they also have to fight for what seems like necessary treatment for life.  Really?

Paul’s mother has started a petition to have ask the Transplant Committee change the decision.   Let’s keep this family in our prayers!

 

 

Share on Facebook Share
Share on TwitterTweet
Share on Pinterest Share
Share on LinkedIn Share
Share on Digg Share

Filed Under: Special Needs Tagged With: Special Needs

Naomi M.

About Naomi M.

Naomi is a homeschool mom of two, one of whom is on the Autism Spectrum. When she is not working or schooling with the kids, she likes to kick back in the recliner to read or to plan the next family adventure.

Reader Interactions

Comments

  1. AvatarCassandra says

    August 10, 2012 at 12:30 pm

    Wow. That is incredibly distressing. 🙁 🙁 🙁 It just seems so wrong.

    Reply

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Primary Sidebar

Naomi M.Naomi is a homeschool mom of two, one of whom is on the Autism Spectrum. When she is not working or schooling with the kids, she likes to kick back in the recliner to read or to plan the next family adventure. Read More…

Don’t Miss A Post

Subscribe to our newsletter HERE!

Blogging Disclosure


As a blogger, I may be compensated in some way (either pay, product, or experience) for sharing posts or links with my readers. All opinions are my own.

You may view our GDPR compliant Privacy Policy HERE.

Search

Follow us

  • facebook
  • twitter
  • instagram
  • pinterest
  • mail

Recent Posts

  • Hershey Bears Teddy Bear Toss 2019
  • Strites Orchard – Field Trip
  • Hersheypark in the Dark
  • Hershey Lodge for a Sweet Time!
  • Legoland Florida in One Day

Tags

#B90Days Autism spectrum Best Buy Blog Hop Brave Christianity Christmas Christmas Desserts Disney Disney's Paradise Pier Hotel Disney California Adventure Park Disney Cruise Line Disneyland Disneyland Resort Disney on Ice DIY Easter EPCOT Giveaway Giveaway Hop Hershey Hershey PA Hersheypark Homeschool It's a Small World Lancaster Magic Kingdom Mickey Mouse Monsters University Pennsylvania Pixar Recipe Special Needs St. Patrick's Day Star Tours Storybook Land Canal Boats Tips Travel Vacation Valentine's Day Valentines Desserts Walt Disney World Walt Disney World Resort Wordless Wednesday World of Color

©ThisRollerCoasterCalledLife.com, 2010-2019. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited.

Copyright © 2021 · Magazine Pro on Genesis Framework · WordPress · Log in

This website uses cookies to improve your experience. We'll assume you're ok with this, but you can opt-out if you wish. Cookie settingsACCEPT
Privacy & Cookies Policy

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.
Necessary
Always Enabled

Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.

Non-necessary

Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.