Urine leakage. This has always been a taboo subject. A subject that that no one seems to want to talk about. Not long before my father passed away, I would have to buy his Depend underwear at the store. When I went up to check out, I would look around before putting the packages on the conveyor belt. I was embarrassed to think … [Read more...] about Stop the Stigma
I'm thankful for our children's therapists and doctors. There was a point during our journey that I thought I would have to consult... the magic lamp that Aladdin found because we just weren't getting any answers and seemed to be going in circles. … [Read more...] about I’m Thankful For…
In our household, "E" is for Ehlers-Danlos Syndrome... at least, for now. Ehlers-Danlos syndrome (EDS) is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Ehlers-Danlos syndrome is uncommon. (Credit: Mayo Clinic website) Almost 2 weeks ago, I posted about the kids' therapy update and the new specialist … [Read more...] about “E” is for Ehlers-Danlos Syndrome – ABCs of Homeschooling
For more than a year, our normal has been Occupational Therapy and Physical Therapy (with a few months of Speech Therapy) every week. DD12 got a few months of reprieve from her Physical Therapy before another specialist ordered her back. Last week, we were told that DS8 had reached a plateau and would not need to continue Physical Therapy and Occupational Therapy, as long as, … [Read more...] about What Does the Future Hold?
What does it take to get a doctor to seriously look at a patient's feet? Well, in our case, it took almost two years. Almost two years ago, DD11 developed petechiae on her feet. Petechiae are small red or purple spots caused by bleeding under the skin. As I have posted previously, DD11 has muscle weakness and an awkward gait. Anyway, we took DD11 to the pediatrician who … [Read more...] about 2 Years to Find One to Look at Her Feet